All's good on the homefront

So sorry I didn't post last week, but my week was pretty much a nonevent in terms of the health things...which is a good event! Aunt Mary Beth came to visit last weekend and we had a grand ol' time touring Austin and shopping/eating around various parts of the city. She really wanted to try food from a trailer.

Aunt Mary Beth at Hey Cupcake! with her Halloween cupcake

She also made me loads of delicious soup which I've been eating since the cold front has moved in! Speaking of cold, the winter weather has spurred lots of shopping in Lindsey and I, so we've been getting packages in the mail daily -- though she's still waiting for her new fancy iPhone 4s! 

Some of the arriving packages have been pills, which as exciting as that seems, is just not. I have one more shot this month and then I have to go through the special pharmacy debacle which last month consisted of -- the pills not arriving on time, the pills arriving almost 48 hours late at like 930pm, the ice pack having exploded in the cooler and covering all the outrageously expensive prescriptions in icepack gel, and all the pills sitting in water/gel substance -- surprisingly, nothing was damaged and the pills have been functioning normally. Since then, CVS Specialty pharmacy has been delivering my other meds, they seem to be doing a MUCH better job than the other pharmacy (except for the picture below)

Last time I checked, a 90 day prescription shouldn't come in 90 different bottles! 

I had to take the Neupogen this past week, though not the week before...so I'm curious to see if it's going to be an every other week thing. This past week my ANC level was the lowest it's been at 561 -- 500 is when I move to "severe neutropenia", so I really hope it doesn't drop much lower. I took the Neupogen at night this time, and it proved to be MUCH better/easier/less painful. 

My regular interferon shot was more painful and left a little bruise, so I think I might have hit a blood vessel or vein or something...not sure about that. 

I've probably eaten McDonalds about 15 times in the past two weeks (pretty much once a day, but some days twice). I've also come to terms with the fact that everything tastes weird, so mostly foods with very distinctive tastes taste the best -- so I made chili and green chile cornbread to accompany my extra salty french fries! 

Oh! also this week I experienced something new. I burned my mouth eating some hushpuppies last weekend, I think. Because I'm neutropenic, my mouth proceeded to heal in slow-motion. It got all these white scabby things where it got burned, then peeled off everywhere, then had some soft pink tissue and is now back to normal -- but it took like four or five days! I can honestly say in my 24 and a half years of life, I've never had my skin in my mouth peel off quite life that. 

Other than that, everything's been pretty good. I've taken lots of naps and tried to sleep as much as possible because that proves to make things much better for me. I also spent a bunch of money stocking my pill box back up with all the OTC drugs that complement my delivery/designer drugs! 

That's it for this week!

Thanks so much Talleys and Coopers for the care packages :) Lindsey, Bean and I have been eating like queens with all the goodies that are either made for us or sent to us! (and we're still taking donations!)

Mom's coming back out to Austin for turkey day so that should be fun! 

Until next week!